Ch7: other

A few other notes from this chapter

  • Evidence that patients want to try out drugs on themselves
    This comment seems to be anecdotal, with views that regulation stops patients taking new drugs when they would be quite happy taking the risks (and that drug trials restrictive). The suggestion is that politicians and medical authorities are much more cautious than patients about taking early versions of new treatments, because they are charged with protecting the public.
    For instance, a US senator is trying to get an amendment to the constitution. Currently to gain access to experimental drugs, roughly 100 hours of work and 30 days waiting must be undertaken. Legislation changing this has passed in 28 states and is under consideration in 10 states [https://www.ronjohnsonforsenate.com/2016/05/10/ron-works-to-give-terminal-patients-the-right-to-try-experimental-drugs/].
    Similar legislation is being pushed for in the UK. Possible this may get backing in the Commons, but will struggle in the Lords. The main focus seems to be about when people should be allowed to try things, particularly when they are ‘no hopers’ [https://www.theguardian.com/society/2016/jan/29/government-backs-wider-access-to-experimental-drugs]. One example is a petition for brain tumour patients to be allowed to try experimental drugs, with 15,000 signatures [https://petition.parliament.uk/archived/petitions/74463].

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